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Dr. Daniel Hernandez explains why the patient’s perspective is critical, especially among Hispanic patients with rheumatoid arthritis (RA), in his presentation at the American College of Rheumatology Convergence 2022, “The Patient’s Perspective on Unique Support and Education needs of Latinx/Latino(a)/ Latino patients with rheumatoid arthritis: Implications for culturally appropriate and disease-specific intervention.” Hernandez is director of medical and Hispanic affairs at the Global Healthy Living Foundation/CreakyJoints.
Hernandez explained that the study focuses on important factors that the culture itself values, emphasizing respect, personality, the trust of those around you, and creating a network, especially that of family members, that the patient can rely on.
“These concepts are very easy to overlook,” Hernandez said. “But if you put it front and center, interview patients, make sure and validate that, and if you focus on those types of concepts, you’re going to get a more engaged audience.”
The researchers used interviews conducted in the patient’s preferred language and transcribed verbatim to better uncover and understand what was most important to this group of patients. They then used this information through a range of tools as well as personal insight to achieve this goal.
Next steps include interviewing more patients and modifying their patient strategies to get the most value from this research, ultimately improving quality of life through its content.
Hernandez is also affiliated with CreakyJoints Español.
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