Cluley V, Ziemann A, Feeley C, Olander EK, Shamah S, Stavropoulou C. Mapping the role of patient and public involvement during the different stages of healthcare innovation: a scoping review. Health Expect. 2022;25(3):840–55.
Google Scholar
O’Shea A, Boaz AL, Chambers M. A hierarchy of power: the place of patient and public involvement in healthcare service development. Front Sociol. 2019;4:38.
Google Scholar
National Mental Health Commission. Sit beside me, not above me: supporting safe and effective engagement and participation of people with lived experience. Sydney: NMHC; 2019.
National Health and Medical Research Council and the Consumers Health Forum of Australia. The Statement on Consumer and Community involvement in Health and Medical Research. Canberra: NHMRC; 2016.
Boote J, Telford R, Cooper C. Consumer involvement in health research: a review and research agenda. Health Policy. 2002;61(2):213–36.
Jørgensen K, Rendtorff JD. Patient participation in mental health care–perspectives of healthcare professionals: an integrative review. Scand J Caring Sci. 2018;32(2):490–501.
Roper CA, Grey FL, Cadogan EM. Co-production: putting principles into practice in mental health contexts. Melbourne: University of Melbourne; 2018 Feb.
Arnstein SR. A ladder of citizen participation. J Am Plann Assoc. 1969;35(4):216–24.
Daya I, Hamilton B, Roper C. Authentic engagement: a conceptual model for welcoming diverse and challenging consumer and survivor views in mental health research, policy, and practice. Int J Ment Health Nurs. 2020;29(2):299–311.
Google Scholar
Jennings H, Slade M, Bates P, Munday E, Toney R. Best practice framework for patient and public involvement (PPI) in collaborative data analysis of qualitative mental health research: methodology development and refinement. BMC Psychiatry. 2018;18(1):1–11.
Google Scholar
Suomi A, Freeman B, Banfield M. Framework for the engagement of people with a lived experience in program implementation and research. Black Dog Institute; 2017.
Staniszewska S, Brett J, Mockford C, Barber R. The GRIPP checklist: strengthening the quality of patient and public involvement reporting in research. Int J Technol Assess Health Care. 2011;27(4):391–99.
Google Scholar
Staniszewska S, Brett J, Simera I, Seers K, Mockford C, Goodlad S, et al. GRIPP2 reporting checklists: tools to improve reporting of patient and public involvement in research. BMJ. 2017;358:j3453. Aug 2;.
Google Scholar
Stocks SJ, Giles SJ, Cheraghi-Sohi S, Campbell SM. (2015). Application of a tool for the evaluation of public and patient involvement in research. BMJ Open. 2015;5(3):e006390.
Brett JO, Staniszewska S, Mockford C, Herron-Marx S, Hughes J, Tysall C, et al. Mapping the impact of patient and public involvement on health and social care research: a systematic review. Health Expect. 2014;17(5):637–50.
Brett JO, Staniszewska S, Mockford C, Herron-Marx S, Hughes J, Tysall C, et al. A systematic review of the impact of patient and public involvement on service users, researchers and communities. PCORI. 2014;7(4):387–95.
Gradinger F, Britten N, Wyatt K, Froggatt K, Gibson A, Jacoby A, et al. Values associated with public involvement in health and social care research: a narrative review. Health Expect. 2015;18(5):661–75.
Google Scholar
Sangill C, Buus N, Hybholt L, Berring LL. Service user’s actual involvement in mental health research practices: a scoping review. Int J Ment Health Nurs. 2019;28(4):798–815.
Google Scholar
Malterud K, Elvbakken KT. Patients participating as co-researchers in health research: a systematic review of outcomes and experiences. Scand J Public Health. 2020;48(6):617–28.
Google Scholar
Roses in the Ocean. Lived experience of suicide [Internet]. Brisbane Qld: Roses in the Ocean; 2021 [cited 15 November 2021]. Available from: https://rosesintheocean.com.au/lived-experience-suicide.
O’Connor RC, Portzky G. Looking to the future: a synthesis of new developments and challenges in suicide research and prevention. Front Psychol. 2018;9:2139.
Google Scholar
Adeyemi I, Sanders C, Ong BN, Howells K, Quinlivan L, Gorman L, et al. Challenges and adaptations to public involvement with marginalised groups during the COVID-19 pandemic: commentary with illustrative case studies in the context of patient safety research. Res Involv Engagem. 2022;8(1):1–12.
Google Scholar
Dreier M, Baumgardt J, Bock T, Härter M, Liebherz S. Development of an online suicide prevention program involving people with lived experience: ideas and challenges. Res Involv Engagem. 2021;7(1):1–14.
Google Scholar
Littlewood DL, Quinlivan L, Steeg S, Bennett C, Bickley H, Rodway C, et al. Evaluating the impact of patient and carer involvement in suicide and self-harm research: a mixed‐methods, longitudinal study protocol. Health Expect. 2021;24:47–53.
Google Scholar
MacLean S, MacKie C, Hatcher S. Involving people with lived experience in research on suicide prevention. CMAJ. 2018;190(Suppl):13–S14.
Google Scholar
Troya MI, Chew-Graham CA, Babatunde O, Bartlam B, Higginbottom A, Dikomitis L. Patient and public involvement and engagement in a doctoral research project exploring self‐harm in older adults. Health Expect. 2019;22(4):617–31.
Google Scholar
Wadman R, Williams AJ, Brown K, Nielsen E. Supported and valued? A survey of early career researchers’ experiences and perceptions of youth and adult involvement in mental health, self-harm and suicide research. Res Involv Engagem. 2019;5(1):1–12.
Google Scholar
Watling D, Preece M, Hawgood J, Bloomfield S, Kõlves K. Developing an intervention for suicide prevention: a rapid review of lived experience involvement. Arch Suicide Res. 2020;18:1–16.
Watling DP, Preece MH, Hawgood J, Bloomfield S, Kõlves K. Developing a post-discharge suicide prevention intervention for children and young people: a qualitative study of integrating the lived-experience of young people, their carers, and mental health clinicians. Child Adolesc Psychiatry Ment Health. 2022;16(1):1–15.
Google Scholar
Knipe D, Padmanathan P, Newton-Howes G, Chan LF, Kapur N. (2022). Suicide and self-harm. Lancet. 2022 May 14;399(10338):1903–1916.
Jorm A. Using the Delphi expert consensus method in mental health research. Aust NZJ Psychiatry. 2015;49(10):887–97.
Google Scholar
Arblaster K, Mackenzie L, Matthews L, Willis K, Gill K, Hanlon P, et al. Learning from consumers: an eDelphi study of australian mental health consumers’ priorities for recovery-oriented curricula. Aust Occup Ther J. 2018;65(6):586–97.
Google Scholar
Telford R, Boote JD, Cooper CL. What does it mean to involve consumers successfully in NHS research? A consensus study. Health Expect. 2004;7(3):209–20.
Google Scholar
Reifels L, Ftanou M, Krysinska K, Machlin A, Robinson J, Pirkis J. Research priorities in suicide prevention: review of australian research from 2010–2017 highlights continued need for intervention research. Int J Environ Res Public Health. 2018;15(4):807.
Griffiths K, Jorm AF, Christensen H. Academic consumer researchers: a bridge between consumers and researchers. Aust N Z J Psychiatry. 2004;38(4):191–6.
Oxford Languages. Researcher [Internet]. Oxford: Oxford University Pres. ; 2021. [cited 15 November 2021]. Available from: https://languages.oup.com.
Happell B, Gordon S, Bocking J, Ellis P, Roper C, Liggins J, et al. Turning the tables; power relations between consumer researchers and other mental health researchers. Issues Ment Health Nurs. 2018;39(8):633–40.
Google Scholar
Meadows G, Farhall J, Fossey EM, Happell B, McDermott F, Rosenberg S, Edan V, Epstein M, Kennedy H, Roper C. Mental Health and Collaborative Community Practice: an australian perspective. Oxford University Press; 2020.
Victorian Department of Health. Lived Experience workforce positions in Victorian public mental health services. 2017.
Mikesell L, Bromley E, Khodyakov D. Ethical community-engaged research: a literature review. Am J Public Health. 2013;103(12):e7–14.
Boursaw B, Oetzel JG, Dickson E, Thein TS, Sanchez-Youngman S, Peña J, Parker M, Magarati M, Littledeer L, Duran B, Wallerstein N. Scales of practices and outcomes for community‐engaged research. Am J Community Psychol. 2021;67(3–4):256–70.
National Health and Medical Research Council. Resource Pack for Consumer and Community Participation in Health and Medical Research. Canberra: NHMRC; 2005.
Niner S, Pirkis J, Krysinska K, Robinson J, Dudley M, Schindeler E, et al. Research priorities in suicide prevention: a qualitative study of stakeholders’ views. AeJAMH. 2009;8(1):48–56.
Saini P, Clements C, Gardner KJ, Chopra J, Latham C, Kumar R, et al. Identifying suicide and self-harm research priorities in north west England: a Delphi study. Crisis. Jan; 2022;43(1):35–45.
Google Scholar
Dempster G, Ozols I, Krysinska K, Reifels L, Schlichthorst M, Pirkis J, Andriessen K. Ethical issues to consider in designing suicide prevention studies: an expert consensus study. Arch Suicide Res 2022 Jan 10;1–17.
The Codesign Initiative. Co-design: Shared perspectives on authentic co-design. 2016.
Banfield M, Randall R, O’Brien M, Hope S, Gulliver A, Forbes O, et al. Lived experience researchers partnering with consumers and carers to improve mental health research: reflections from an australian initiative. Int J Ment Health Nurs. Aug; 2018;27(4):1219–29.
Google Scholar
Ianniello M, Iacuzzi S, Fedele P, Brusati L. (2019). Obstacles and solutions on the ladder of citizen participation: a systematic review. Public Manag Rev.2019;21(1):21–46.
Pearce T, Maple M, Shakeshaft A, Wayland S, McKay K. What is the co-creation of new knowledge? A content analysis and proposed definition for health interventions. Int Int J Environ Res Public Health. 2020;17(7):2229.
Google Scholar
“Exploring patient and public. Involvement (PPI) and co-production approaches in mental health research: learning from the PARTNERS2 research programme. Res Involv Engagem. Sep 2020;21:6:56.
De Leo D, Goodfellow B, Silverman M, Berman A, Mann J, Arensman E, Hawton K, Phillips MR, Vijayakumar L, Andriessen K, Chavez-Hernandez AM. International study of definitions of English-language terms for suicidal behaviours: a survey exploring preferred terminology. BMJ Open. 2021;11(2):e043409.
Hawgood J, Gibson M, McGrath M, Riley J, Mok K. Preliminary evaluation of lived experience of suicide training: short-, medium-and longer-term impacts of our voices in action training. Community Ment Health J 2021;24:1–2.
Huisman A, van Bergen DD. Peer specialists in suicide prevention: possibilities and pitfalls. Psychol Serv. 2019;16(3):372–80.
Google Scholar
Sellin L, Asp M, Wallsten T, Wiklund Gustin L. Reconnecting with oneself while struggling between life and death: the phenomenon of recovery as experienced by persons at risk of suicide. Int J Ment Health Nurs. 2017;26(2):200–7.
Google Scholar
Sun FK, Lu CY, Tseng YS, Chiang CY. Factors predicting recovery from suicide in attempted suicide patients. J Clin Nurs. 2017;26(23–24):4404–12.
Google Scholar
Sveticic J, De Leo D. The hypothesis of a continuum in suicidality: a discussion on its validity and practical implications. Mental Illn 2012; 4(2): e15.
Chi MT, Long A, Jeang SR, Ku YC, Lu T, Sun FK. Healing and recovering after a suicide attempt: a grounded theory study. J Clin Nurs. 2014;23(11–12):1751–59.
Google Scholar
Levi-Belz Y, Krysinska K, Andriessen K. Turning personal tragedy into triumph”: a systematic review and meta-analysis of studies on posttraumatic growth among suicide-loss survivors. Psychol Trauma. 2021;13(3):322–32.
Google Scholar
Lavers G, Andriessen K, Krysinska K. A systematic review of the experiences and support needs of informal caregivers for people who have attempted suicide or experienced suicidal ideation. Int J Environ Res Public Health. 2022;19(9):5181.
Google Scholar
Abrutyn S, Mueller AS. Toward a robust science of suicide: epistemological, theoretical, and methodological considerations in advancing suicidology. Death Stud. 2021;45(7):522–7.
Google Scholar